CHALLENGES TO INADEQUATE TREATMENT, MANDATORY TESTING,
AND SEGREGATION OF INMATES WITH HIV/AIDS (See footnote 1)
Robert D. Fleischner
Center for Public Representation
Northampton, Massachusetts
June 2004
Inmates and detainees who test positive for Human Immunodeficiency Virus (HIV) and Acquired Immune Deficiency Syndrome (AIDS) often find themselves in complex legal and practical situations in prisons, jails and juvenile detention facilities. The sheer number of reported and unreported prison cases addressing a wide variety of HIV and AIDS-related issues is testament to the scope of the problems. This fact sheet will summarize some of the case law on segregation and mandatory testing and review cases claiming inadequate medical treatment.
Many HIV-related prison cases were decided in the late 1980s and early 1990s. To some extent they reflect a lack of understanding of HIV and AIDS. As scientific knowledge of the virus has increased and medical treatments have improved, many prison administrators appear to have loosened the grip of the earlier draconian measures. Nevertheless, even some of the later court opinions do not reflect the advances in medical care and scientific knowledge.
I. The Scope of the Problem
Two provocative workshops at the 2004 TASC P&A/CAP Annual Conference presented helpful, though cautionary, information about the prevalence and implications of HIV/AIDS in prisons and juvenile justice facilities. (See footnote 2) The workshop leaders discussed both the scope of the problem and some of the encouraging work that is being done in some correctional and juvenile justice facilities.
In 2001, nearly 2% of prisoners were known to be HIV-positive. Infection rates are higher for women than for men. The rate of AIDS among prisoners is said to be more than three times the rate in the general population. In 2001, over 250 prisoners died of AIDS related diseases, a death rate more than twice that of the general population. (See footnote 3) Although the rates of HIV/AIDS are lower in juvenile facilities, children and teens in the juvenile justice system report high rates of behaviors that put them at significant risk. (See footnote 4) The Centers for Disease Control has reported that although the overall number of new diagnosed AIDS cases is declining nationally, there has not been a comparable decline in the number of newly diagnosed HIV cases among youth (13-24-year-olds). (See footnote 5) Among youth, African Americans account for 56% of all HIV cases reported. (See footnote 6) This is particularly significant since a majority of the juvenile prison population is African American youth.
II. Case law challenging segregation and mandatory testing. (See footnote 7)
A. Practices that lead to litigation.
Prior to their imprisonment, a significant number of inmates have engaged in behaviors – particularly intravenous drug use -- that put them at risk for HIV infection. (See footnote 8) While imprisoned, there is a possibility that inmates will engage in unprotected sexual relations. (See footnote 9) Consequently, it is generally recognized that the spread of the disease should be a matter of concern to correctional officials. Likewise, inmates who have HIV or AIDS need appropriate, often complex, medical care and treatment.
The CDC has recommended that prisons use universal precautions and inmate education rather than mandatory testing and segregation to respond to HIV and AIDS. (See footnote 10) The growth of medical knowledge about HIV and AIDS has in recent years led many correctional systems to discontinue using segregation, although the practice still exists. Not surprisingly, prisoners in those facilities have sued to challenge the practices. The segregation cases have sometimes included claims that the prisoners with HIV or AIDS have also been excluded from prison activities and programs.
In June 2004, a federal court in Mississippi ordered the state to “allow HIV-positive prisoners who otherwise meet the criteria for Community Work Centers to participate in Community Work centers, on the same basis as prisoners who do not have HIV.” In announcing the decision, the National Prison Project said that Alabama now remains the only state that excludes all prisoners with HIV from community correction programs. (See footnote 11)
Conversely, in some facilities that do not require mandatory testing, do not segregate, or do not use universal precautions, uninfected inmates have sued alleging that correction officials have failed to protect them from the potential harm they claim is posed by living in close quarters with prisoners who are HIV-positive.
B. Mandatory testing and segregation cases.
Cases challenging mandatory testing and segregation are among the most common of the prisoner-initiated AIDS litigation. The cases arise under a number of causes of actions, the most common of which are a right to privacy, equal protection, freedom of association, due process, § 504 and the Americans with Disabilities Act, and the Eighth Amendment. Courts’ analyses of the claims, of course, depend on the source of the right that has been asserted. (See footnote 12)
Regardless of the bases of the prisoners’ claims, the correctional facilities’ responses have usually been the same. The facilities inevitably argue that testing and segregation policies serve a legitimate penological purpose and are justified to identify infected inmates, to protect non-infected inmates from the risk of infection, to provide appropriate medical treatment to inmates with HIV or AIDS, and to protect the identified inmates from physical abuse from others. (See footnote 13) Defendants have also argued that segregation is anticipated by the inmate’s sentence and therefore consistent with it.
1. Privacy-based challenges
Courts in some cases have recognized that inmates have a federal constitutional right to privacy regarding their HIV-positive status. (See footnote 14) In Doe v. Delie, (See footnote 15) the Third Circuit, for example, in a case involving medical records with HIV/AIDS information held:
Although the exact boundaries of such a right have yet to be established, we hold today that prison inmates retain a Fourteenth Amendment substantive due process right to privacy in their medical information. The exact parameters of a prisoner's right to privacy in that information will have to be determined in a later case on a more complete record, where the Turner factors can be fully considered in the context of the penological interests concerned.
Another court observed that the Supreme Court has recognized a constitutionally protected privacy interest in avoiding disclosure of personal matters, and in independence in making certain kinds of important decisions. Because of the stigma that attaches to AIDS, the court held that the privacy interest in information about exposure to the HIV virus is even greater than that in ordinary medical record. Therefore, information about an inmate's HIV status is deserving of a high degree of protection, even in a prison. (See footnote 16)
Likewise, a federal district court in New York found that mandatory segregation of HIV-positive prisoners violated their privacy rights. The court said that having an incurable disease was a highly persona matter, the disclosure of which has significant implications. Since, guards and other inmates could easily identify segregated inmates, the HIV-positive inmates’ privacy rights were violated. The court said the defendants had failed to identify legitimate penological interests sufficient to overcome the prisoners’ privacy rights. (See footnote 17)
However, a significant number of courts, even when recognizing a privacy right, have held that it does not extend to prisoners with HIV/AIDS because of overriding institutional interests. (See footnote 18) For example, the Tenth (See footnote 19) and Eleventh Circuits (See footnote 20) have each held that mandatory blood testing was reasonably related to the legitimate penological purposes of the institutions. The Tenth Circuit found, for example, that the prisoner’s expectation of privacy was outweighed by the prison’s stated goals of providing adequate health care and preventing the spread of the virus. The court was not persuaded by the prisoner’s evidence that the HIV virus is not communicable among prisoners who merely live together or that even though it tested inmates, the prison did not actually provide treatment or segregate those who tested positive. (See footnote 21) The Eleventh Circuit has undertaken a similar analysis in lengthy litigation challenging both testing and segregation. In 1991, the court held that the prison officials’ right to maintain institutional security outweighed the prisoners’ privacy rights. Despite acknowledging that Alabama’s segregation policy was contrary to the growing “mainstreaming” trend, the court held that the matter was unsettled and that segregation was not “so remotely connected to the legitimate goals of reducing HIV transmission and violence … as to render it arbitrary or irrational.” (See footnote 22)
2.
Some challenges to segregation have been based on the loss of opportunities for isolated prisoners to participate in and take advantage of programs that are offered to other inmates. Typically, defendants have argued that they have a rational reason for their policies, enough to sustain them under a rational relationship analysis. These cases may also make claims under § 504 and the ADA. For the most part, the prisoners’ equal protection claims are unsuccessful, as courts defer to administrative decisions of the facility administrators.
Another court upheld a policy that prevented inmates who were HIV-positive from working in the prison kitchen. Although the court acknowledged that HIV cannot be transmitted by casual contact with food or other workers, it found the policy to be rationally related to a legitimate penological interest in maintaining security and order in the prison. (See footnote 25) The court in Powell v. Department of Corrections, State of Oklahoma, used similar reasoning to deny a prisoner’s claim that segregating him prevented him for getting exercise, having family visits, having access to the law library, and attending worship services, thereby violating his equal protection rights. (See footnote 26) In its equal protection analysis, the court compared his access to programs, which it found was limited but not non-existent, to that of other prisoners with HIV, not to that of the general population. (See footnote 27)
3. Due process claims.
Courts have also found liberty interests in the refusing certain medical treatment. Indeed, a prisoner "possesses a significant liberty interest in avoiding the unwanted administration of” mental health treatment,
(See footnote 31) or, for that matter, any other type of medical treatment. (See footnote 32) These rights, however, are subject to clear limitations. (See footnote 33)Accordingly, some courts have sustained claims by segregated inmates that they had acquired a liberty interest from a prison regulation or handbook and, therefore, that a due process right was violated when they were segregated. Other courts have found that due process rights are not implicated by segregation of prisoners with HIV or AIDS.
Likewise, also pre-Sandin, another New York federal court, relying in part on Vitek v. Jones, awarded judgment to a former inmate, holding that by incarcerating her in a segregated section of the facility, the defendants violated the inmate's right of due process under the Fourteenth Amendment, since a handbook and certain regulations for the facility conferred a liberty interest to be placed in the general population absent a proper finding that she needed to be segregated. (See footnote 36) The facility’s medical policy and procedure manual provided that housing decisions will not be made solely on the basis of an individual's HIV status. Since no finding of the need for segregation had ever been made, the inmate’s due process rights were violated.
Even prior to the Supreme Court’s limiting opinion in Sandin, a number of courts declined to find that inmates segregated because of an HIV-positive status acquired a liberty interest from a prison regulation. For example, the Eighth Circuit has held that prison regulations did not create any liberty interest that would preclude a federal prisoner’s isolation in an AIDS unit without a hearing. (See footnote 37) The court found that the segregation was medically directed, and not the result of a discretionary administrative decision. The administrative detention regulations, the court explained, did not apply to medical determinations regarding isolation and segregation. Similarly, a federal court in Maryland held that isolation of prisoners suspected to be HIV-positive was a medical decision to which due process protections do not apply. (See footnote 38)
The Sixth Circuit, in Hansard v. Barrett, rejected a claim of a due process violation brought by segregated homosexual inmates who were denied the opportunity to earn good time credits by participating on work details. (See footnote 39) The court found no liberty interest created by prison regulations.
4. Claims under the Eight Amendment.
The Eighth Amendment protects convicted prisoners from cruel and unusual punishment. (See footnote 40) The scope and history of the constitutional prohibition has been recounted in several Supreme Court opinions and the Court has held that medical care is among the conditions of confinement that are subject to judicial review under the Amendment. (See footnote 41)
According to these opinions, the primary concern of the drafters of the Constitution was to prohibit tortures and other barbarous methods of punishment though the Amendment also "proscribes more than physically barbarous punishments." (See footnote 42) In fact, the Amendment embodies broad and idealistic concepts of dignity, civilized standards, humanity and decency against which penal measures are evaluated. In analyzing whether a prison policy or practice offends the Eight Amendment, a court must consider the seriousness of the deprivation and whether the inmate is being deprived the minimal civilized measure of life necessities. In the case of medical care, the deprivation must be serious. (See footnote 43) This determination is made in the context of prison conditions by ascertaining whether an official acted with "deliberate indifference" to the inmates' health or safety. (See footnote 44)
Therefore, in an Eighth Amendment case, a prisoner must allege, first, a sufficiently serious deprivation and, second, that officials acted with a sufficiently culpable state of mind. In analyzing claims, courts consider both the objective component whether the wrongdoing was "harmful enough" to implicate the Eighth Amendment and the subjective component whether the officials acted with a sufficiently culpable state of mind. (See footnote 45)
In Harris v. Thigpen, (See footnote 46) the court held, among other things, that although the Eighth Amendment guaranteed the inmates' right to adequate medical care, the inadequacies in the treatment offered HIV-positive prisoners did not amount to deliberate indifference to the prisoners' serious medical or psychiatric needs. The court held that the Constitution is violated only when the prison medical care is “so grossly incompetent, inadequate, or excessive as to shock the conscience or to be intolerable to fundamental fairness.” (See footnote 47) While the evidence presented by the plaintiffs might establish inadequate treatment for some of the prisoners, the cases at most evidenced isolated incidences of medical malpractice.
Given the standard, Eight Amendment-based challenges to segregation or mandatory testing, not surprisingly, are often not successful. In Cordero v. Coughlin, (See footnote 48) the court held that the segregation of the prisoners from the general inmate population, and the consequent lack of social, recreational and rehabilitative opportunities for the prisoners, did not amount to cruel and unusual punishment. Likewise, a court denied a female inmate with HIV’s request for an injunction prohibiting her continued confinement in isolation at a medical center because she had failed to show a likelihood of success on her Eighth Amendment claims. (See footnote 49) The court concluded that isolation from the general population was a reasonable medical approach in the best interest of the inmate and of the rest of the prisoners. The prison officials’ treatment was no so cruel as to constitute deliberate indifference to the inmate's medical needs.
Taking a quite different approach, a pretrial detainee with HIV was unsuccessful in claiming an Eight Amendment violation because the prison did not segregate him from the general population, thereby exposing him to harm. (See footnote 50)
5. Claims under § 504 and the ADA.
Some plaintiffs have used § 504 and the Americans with Disabilities Act as the bases of claims that as individuals with qualifying disabilities, segregation is a form of discrimination. Courts have applied § 504 to prisons and jails if they receive federal funds and if the prisoner plaintiffs can demonstrate that they are “handicapped” and “otherwise qualified” for the program in question. (See footnote 51) The Supreme Court held that the ADA applies to prisons in Pennsylvania Department of Corrections v. Yeskey. (See footnote 52)
In an earlier decision in Roe v. Fauver, (See footnote 53) the court denied the defendants’ motion for summary judgment on the plaintiffs claim that the segregation of the inmates in special AIDS units within the state prison system violated § 504.
However, in Onishea v. Hopper, (See footnote 54) the Eleventh Circuit en banc held that the administrative segregation of all HIV-positive prisoners did not violate the Rehabilitation Act. According to the National Prison Project of the ACLU Foundation, “Alabama is the only state in the country that forbids HIV-positive prisoners from participating with other prisoners in any programs.” (See footnote 55) The Onishea opinion is one of a series in a longstanding case challenging these policies. Despite the sweeping uniqueness of the Alabama policy, the court, reviewing findings of the district court and a lengthy trial record, affirmed findings that a significant risk of HIV transmission existed for any prison program in which HIV-positive inmates sought participation. The court held, therefore, that the district court was had not erred in finding that a prisoner with HIV was not an "individual with a disability" under the act since the definition excluded an individual with a currently contagious disease or infection who would constitute a direct threat to the health or safety of other individuals. (See footnote 56) The court held that the prisoner was a significant risk to others, even though the odds of transmission were admittedly small. The appellate court also affirmed the lower court’s findings that integrated prison programs would create a risk of violence and, that segregation of HIV-positive inmates was not an exaggerated response to the risk. In addition the court held that it was proper to consider the cost of hiring of additional guards to deter high-risk behavior in determining whether that was a reasonable accommodation. (See footnote 57) Finally, the court held that the trial court’s finding that hiring additional staff would impose an undue burden was not clearly erroneous.
In another § 504 case, Gates v. Rowland, (See footnote 58) the Ninth Circuit reversed a district court's order that authorities to allow HIV-infected inmates the opportunity to work in food service jobs. The appellate court held that prison officials had legitimate penological concerns, arising not from their own concern about transmission through food, but rather from other inmates' perception of how the virus might be transmitted. The officials argued, and the court found it reasonable, that the other inmates would erroneously perceive a threat regardless of scientific research or medical pronouncements to the contrary. Consequently, there might be violent actions against the inmates with or perceived to have the virus.
A California district court has distinguished Gates in holding that an inmate who was HIV-positive and his wife, who was also HIV-positive, had stated a claim in their complaint that that prison officials’ refusal to permit them to participate in the prison's conjugal visits program violated both the ADA and § 504. (See footnote 59) The court was not convinced by the prison officials’ argument that other prisoners might be incited to violence if they had to use the visit room after the plaintiffs used it. Among other factors was that the prison did not have mandatory testing, so other inmates must have known that unidentified prisoners who were also HIV-positive might use the room.
An Illinois district court held that a pretrial detainee with AIDS who was shackled to his outside-the-prison hospital bed stated claims under the ADA and constitutional claims for denial of due process and access to the courts. (See footnote 60) The court found that the detainee could establish that he was an individual with a disability under the ADA. The court also held that the plaintiff had pleaded sufficient facts to allege discrimination. The detainee alleged that was able, with reasonable accommodation, to participate in his personal care, the defense of his criminal case, and programs available to detainees at the county jail. A full development of the facts would, the court said, be necessary to determine whether the requested accommodation was "reasonable." Second, the court said, although the shackling policy at the hospital applied to disabled and non-disabled hospitalized detainees, it was plausible that it policy had a much more severe impact on disabled individuals. Consequently, most of the case was allowed to go forward.
C. Cases by prisoners without HIV, seeking separation from prisoners with HIV.
Some cases have been brought seeking mandatory testing and segregation of prisoners who are or may be HIV-positive. Most of the cases have been brought under the Eight Amendment and claim that prison officials have failed to protect the plaintiffs from the potential harm that may come from contact with prisoners with HIV/AIDS. The cases almost universally fail. Courts note that the plaintiff prisoners’ fears are based on theoretical risks and unsubstantiated fears and ignorance of the HIV virus. (See footnote 61)
As several commentators have pointed out, the courts’ reasons for ruling against prisoners seeking segregation from prisoners with HIV are often precisely the same ones courts have flatly rejected and coldly discounted when they are raised by inmates with HIV seeking to end segregation policies. (See footnote 62)
The different views among prisoners about whether their fellow inmates with HIV should be integrated into the general population and into prison activities has led to difficulties for some class counsel in conditions cases. A federal district court in Mississippi appointed an attorney to represent the plaintiff class in a case challenging the segregation of inmates who has tested positive for HIV. The attorney delayed in working on the case. The class members sought to substitute counsel claiming that the delays were due in part to the opposition of non-class member prisoners in the general population whom the lawyers represented as class counsel in other prison conditions cases. The Fifth Circuit reversed a decision of the district court and removed the attorney in part because of a conflict of interest. (See footnote 63)
III. Cases claiming inadequate medical care for HIV/AIDS.
Some correctional facilities provide less than optimal medical care and treatment. An extensive body of case law has developed describing the constitutional standards for medical and mental health care in prisons, jails, and juvenile detention facilities. (See footnote 64) Not surprisingly, there are numerous prisoner suits challenging the lack of availability of appropriate medications, the failure to provide treatment promptly or at all, and misdiagnosis and improper treatment of HIV and AIDS. This section will briefly survey some of the representative cases. (See footnote 65)
A. Failure to diagnose. (See footnote 66)
In a damage action brought by the parents of an inmate who died of AIDS, a court found no Eight Amendment violation. (See footnote 67) The parents’ claimed that the prison medical staff had failed to diagnose or treat the inmate’s condition. (See footnote 68) The court held that the inmate’s condition met the “seriousness” standard, as the inmate’s condition was so obvious that a layperson would easily recognize the necessity for a doctor's attention. However, the court held that neither the alleged negligent failure to diagnose the condition as AIDS nor the alleged decision to treat to what the doctors believed to be a cold Tylenol and throat lozenges rose to the level of “deliberate indifference.”
B. Medication related cases
Prisoners have challenged the total failure to provide any medication for HIV/AIDS, delays in providing medication, interruption of medication, and inadequate doses. The cases have been brought under a variety of statutory and constitutional causes of actions.
Several courts have held that allegations that prison officials or employees failed to provide any treatment for an inmate's AIDS or HIV-positive condition known to the officials or employees stated a claim under the Eighth Amendment. (See footnote 69) Similar claims under the Fourteenth Amendment have also survived defendants’ motions to dismiss or for summary judgment. For example, a plaintiff detainee in
In a class action, the court in Roe v. Fauver, denied the prison officials' motion for summary judgment, holding the plaintiffs’ Eighth Amendment claim was supportable. The inmates alleged that they sometimes did not get their AZT at the correct time, or did not receive it at all, or were given incorrect dosages. (See footnote 71)
However, other courts have held that delays in beginning treatment or interruptions of treatment with medication did not violate the Eighth Amendment. For example, in Parker v. Proffit, the court dismissed claims against jail officials alleging that that a 57-day delay in commencing AZT treatment following the diagnosis of HIV violated the Eighth Amendment. (See footnote 72) The court held the delay was not so grossly incompetent, inadequate, or excessive as to shock the conscious or to be intolerable to fundamental fairness, noting that the efficacy of prescribing AZT was not as conclusive in 1991 and 1992 when the delay occurred as it perhaps was in 1995 when the motion was filed.
Other cases have alleged that the prisons failure to provide a particular medication for treatment of HIV or AIDS constituted a constitutional or statutory violation. For example, an inmate’s claim that the change of medication had no medical purpose, caused serious side effects, shortened his life, and was motivated solely by cost considerations, stated a claim for violation of the Eighth Amendment in Taylor v. Barnett. (See footnote 73) However, the Tenth Circuit has held that the district court properly dismissed a prisoner's Eight Amendment claims that he was not provided the proper combination of medications. (See footnote 74)
IV. Conclusions
In her 1995 review of the case law, Kathleen Knepper concluded that that courts display a high degree of deference to the decisions of prison administrators and to the policies and practice that they adopt and implement. She also found strong evidence of an absence of consensus of among prison official on how to respond to the presence of inmates with the HIV virus or AIDS and a marked lack of consistent guidance from the courts. (See footnote 75) Not much appears to have changed since then.
Footnote: 1 Produced by the Center for Public Representation (CPR) with a grant from the Training Advocacy Support Center (TASC) at the National Association of Protection and Advocacy Systems, Inc. (NAPAS). Support for the development of this document comes from a federal interagency contract with the Administration on Developmental Disabilities (ADD), the Center for Mental Health Services (CMHS), and the Rehabilitation Services Agency (RSA).
Footnote: 2 The criminal justice track of the conference included a workshop entitled “HIV/AIDS and the Adult Offender,” presented by Jackie Walker of the American Civil Liberties Union, and "HIV/AIDS and the Juvenile Offender,” presented by Adam Tenner, Executive Director, Metro Teen AIDS. The presenters’ informative materials and handouts are available on the CD of conference materials made available to all conference attendees and to the Executive Director of each of the nation’s P&A agencies.
Footnote: 3 United States Department of Justice, Bureau of Justice Statistics,
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Footnote: 8 The primary risk factors for imprisonment, poverty and intravenous drug use, are essentially the same as those for exposure to communicable disease. Kathleen Knepper,
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Footnote: 14 For example, the following cases are among those that recognize a constitutional privacy right for prisoners with HIV/AIDS.
Footnote: 15 257 F.3d 309, 323 (3d Cir.2001).
Footnote: 16Faison v. Parker, 823 F.Supp. 1198 (E.D. Pa. 1993).
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Footnote: 35 See footnote 29, supra.
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Footnote: 48 607 F.Supp. 9 (S.D.N.Y. 1984).
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Footnote: 52 524 U.S. 206 (1998). Materials on the application of the ADA to prisons and jails can be found on the e NAPAS website in the members only section.
Footnote: 53 1988 WL 106316 (D.N.J. 1988).
Footnote: 54 171 F.3d 1289 (11
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Footnote: 65 For a comprehensive listing and analysis of these cases see the ALR Fed. annotation cited in foot note *.
Footnote: 66 There have also been cases challenging the misdiagnosis of an inmate to have AIDS when he did not. See, e.g.,
Footnote: 67
Footnote: 69 See, e.g.,
Footnote: 70 46 F. Supp. 2d 49 (D.Me. 1999). The plaintiff’s claims under the ADA also survived.
Footnote: 71 1988 WL 106316 (D.N.J. 1988).
Footnote: 72 1995 WL 631993 (W.D. Va. 1995). See also, Walker v. Peters, 989 F. Supp. 971 (N.D. Ill. 1997)(the failure to commence treatment for prisoner's AIDS prior to testing him for the disease did not violate the Eighth Amendment; it did not help the plaintiff’s case that he had, for a time, refused to be tested) and Nolley v. Lord, 1997 WL 698172 (S.D.N.Y. 1997)(discontinuance of one inmate's medication for eight days did not amount to an Eighth Amendment violation).
Footnote: 73 105 F. Supp. 2d 483 (E.D. Va. 2000). See also,
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